FASD United (Formerly the National Organization on Fetal Alcohol Syndrome or NoFAS) is a non-profit organization that works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities. More information about FASD United can be found on the FASD United website.
Websites
Research Opportunities
Adults Needed for Fetal Alcohol Spectrum Disorder (FASD) Mobile Health App Feasibility Trial
Are you 18 years or older and been diagnosed with FASD or known prenatal alcohol exposure? You may qualify for this study. University of Rochester’s researchers are partnering with the Adult Leadership Collaborative of the FASD Changemakers to develop a new app for adults with FASD. This app provides resources, tools, and information to improve physical health and quality of life for adults with FASD or known prenatal alcohol exposure. Participate in a feasibility study to try the app to give feedback on how well it works and receive monetary compensation. Learn more at https://bit.ly/adult_app_trial
Families Moving Forward (FMF) Connect
FMF Connect is a smartphone app developed for parents and caregivers raising children with fetal alcohol spectrum disorders. FMF Connect provides parents and caregivers useful information to help them manage their children’s condition and get peer support. The study is now closed, but more information about FMF Connect including how to find out when it is available to the public, click here or go to: www.fmfconnect.com
Other Resources
Click below to download a PDF handout for families.
FASD_FamilyFeedbackSheet_2021
Click below to download a PDF handout for clinicians and other care providers.
FASD_ClinicianFactSheet